CASEGEVY – SCI & TECH

News: US approves two gene therapies for sickle cell disease

 

What's in the news?

       Recently, the U.S. Food and Drug Administration (FDA) approved a pair of gene therapies for sickle cell disease, including the first treatment based on the breakthrough CRISPR gene editing technology.

 

Key details from news:

       The two gene therapies are Casegevy and Lyfgenia.

       Both the therapies were approved for people aged 12 years and older.

       Makers of both the therapies have pitched them as one-time treatments, but data on how long their effect lasts is limited.

       The only longer-term treatment for sickle cell disease is a bone marrow transplant.

 

Lyf Genia:

       Bluebird bio’s sickle cell therapy is designed to work by inserting modified genes into the body through disabled viruses to help the patient’s red blood cells produce normal hemoglobin.

 

Vertex gene therapy:

       In Vertex’s therapy, patients must have stem cells harvested from their bone marrow.

       The cells are then sent to manufacturing facilities where they are edited using CRISPR/Cas9 technology.

       Once the cells are incubated, they are infused back into the patient during a month-long hospital stay.

 

What is Sickle Cell Disease?

       Sickle cell disease is a painful, inherited blood disorder that can be debilitating and lead to premature death.

       It affects an estimated 100,000 people in the United States, most of whom are Black.

       In sickle cell disease, the body makes flawed, sickle-shaped hemoglobin, impairing the ability of red blood cells to properly carry oxygen to the body’s tissues.

       The sickle cells tend to stick together and can block small blood vessels, causing intense pain.

       It also can lead to strokes and organ failure.